
Wilderness Blessings
How Down Syndrome Reconstructed Our Life and Faith
by Jeffrey M. Gallagher
This title was previously available on NetGalley and is now archived.
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Pub Date Sep 30 2013 | Archive Date May 20 2014
Description
From the emotional and poignant blog entries posted during his son Jacob’s uncertain birth, trying surgeries, and first year of living with Down syndrome, author and pastor Jeffrey M. Gallagher reflects honestly and candidly on disability theology, God’s place in tragedy and hardship, how the church welcomes (or not) people with differing abilities, and the joys—the wilderness blessings—that Jacob’s life has given him.
Advance Praise
"Jacob Gallagher takes his family--and all of us--on an epic journey
from the moment he was born. He teaches love in a deeper way, hope in a
more robust nature, and faith in a profound sense. This book is
must-read for all families who seek a spiritual framing to their life
journey."
―Brian G. Skotko, M.D., M.P.P., medical geneticist, Massachusetts General Hospital, assistant professor, Harvard Medical School
“With wit, compassion, and fierce tenderness, Jeff Gallagher, a
seasoned pastor and devoted father, shares the joys and challenges that
only an insider can know about how the birth of a child with Down
syndrome can teach a family and an entire congregation to appreciate the
gift of being just like the rest of us: God’s ‘perfectly imperfect.’”
―Marvin M. Ellison, ethicist and author of Making Love Just: Sexual Ethics for Perplexing Times
"Jeff Gallagher speaks with passion and certainty about his child and
God’s grace, yet is refreshingly candid about what he does not know
about either. Following the Gallaghers’ journey in 'real time' with
Jeff’s blog posts to frame the story gives the reader an opportunity to
connect with the family’s emotions and live their journey, even if it
was years ago. This exercise alone was rewarding.
Jeff’s evolution with Down syndrome and his faith and worldview are
discussed as if having coffee with the reader, not as pronouncements of
doctrine from his pulpit. Jeff writes, 'I believe faith compels us to
make a difference in this world.' Wilderness Blessings will make a difference, especially if you’ve ever questioned how disability and God intersect."
―Joe Meares, Founder of Dads Appreciating Down Syndrome
"Wilderness Blessings is a first-person account of one
family’s journey from expectation, through fear, to perfect blessings
granted in an imperfect world. It’s also the story of the loving
relationship between one pastor and his congregation, played out at the
intersection of distance and closeness, boundaries and need, public and
private life. Parents of perfectly imperfect kids, pastors who must live
private struggles publicly, and congregations wondering how best to
love their leaders through the struggle will all find something here to
help them through the wilderness."
―Quinn G. Caldwell, author of The Unofficial Handbook of the United Church of Christ and part of the United Church of Christ's popular Stillspeaking Writers' Group
"Jeff Gallagher's book is written in good pastoral style: a kind of
verbatim, or theological reflection, on the first year of his son
Jacob's life. Using email updates from those days, with added
reflections, we are able to companion Jeff and Kristen, Noah and Jacob,
and all their extended family and caregiving system, through the
beginning transformative process of being a family which includes a
child with Down syndrome. Both informative and heartwarming, Wilderness Blessings
should appeal to all who are interested in learning more about Down
syndrome from a parent's vantage point, particularly a parent who has
the advantage of deep pastoral skills and considerable theological
reflective capacity. As a parent of an adult child with significant
disabilities I can affirm both the title and the experiential substance
of Wilderness Blessings. I heartily recommend it."
―Rev. Dr. Peggy Davis, co-chair, United Church of Christ Disabilities Ministries Board
"Wilderness Blessings is beautiful. I thought it was so honest and rich in detail that I felt like I was watching Jeff's journey through a window...The book...is very heartfelt, honest, fun and spiritual, all at the same time. Jeff's touch on faith and his beliefs really make it thought-provoking for anyone."
―Angela Lombardo, Down Syndrome Program Coordinator, Boston Children's Hospital
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Available Editions
EDITION | Ebook |
ISBN | 9780827243088 |
PRICE | $18.99 (USD) |