Cover Image: All Tangled Up in Autism and Chronic Illness

All Tangled Up in Autism and Chronic Illness

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Member Reviews

Thank you to netgalley and the publisher for the ARC!

As a neurodivergent person who has felt gaslit by the medical community - I truly appreciated this book. I felt validated and seen. This information wasn’t necessarily new to me - as far as health care system navigation - but it was still a good reminder of how I can feel “Stuck” because of flaws in society. My psychology background also made me appreciate the insight into this book, as well as being a nurse ❤️ neurodivergent people aren’t regularly recognized in health care until there’s a major problem and this taught me a lot about the gaps due to ableism

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Thank you NetGalley and Jessica Kingsley Publishers for this eARC in exchange for an honest review.

As someone who is ND with POTS and suspected MCAS, this was spot on. The author said they got a pamphlet for all their diagnoses (hey- you guys got pamphlets?!). I knew from the introduction that this was going to be a great book for me.

I loved the smaller, digestible sections within the chapters. Plenty of places to pause and take things in.

I found many helpful tidbits in here and the book itself was very affirming- my one and only complaint is that I wish there were more details/examples in some sections.

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I found that All Tangled Up in Autism and Chronic Illness didn't provide me with many new insights, as I was already familiar with most of the practical advice due to my long-term illness. However, the book did succeed in creating a welcoming sense of community and served as a reminder that I'm not alone in my journey. I appreciate the fact that the book has gathered perspectives from various individuals rather than just the author. In my opinion, this book would be valuable for individuals who are newly diagnosed or caregivers seeking guidance and support.

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This was a book that was so good to me, particularly because it hit me so personally. I can really resonate with this because I am both on the spectrum (neurodivergent) and have chronic illness. To hear from not only the author, but other patients in the book as well, really meant a lot to me. It's so helpful because I know I am not alone and there are others like me who feel this way and live this life. Representation is so important, especially because autism is hard enough as it is, but mix in chronic illness (or vice versa) and the world becomes THAT much harder. Having a book where I can see myself in the author and the other contributors is very validating. I loved how the author explained everything, going from each system of the body, and gave tips on how we can understand ourselves better and take steps to help ourselves. This would definitely be a perfect book for those who are newly diagnosed and are trying to navigate the world.

Thank you to NetGalley and Jessica Kingsley Publishers for an eARC of this book.

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Thank you NetGalley, the publisher and the author for the ARC of this title in exchange for an honest review.

As someone who struggles with chronic illness/disability and is awaiting an autism diagnosis I was really excited to be accepted to read this ARC.
I unfortunately didn't feel like I gained too much from this as I was already aware of most of the helpful tips because I have been ill for so long already. It was nice however to have the confirmation that I am not alone. Thousands of people are going through the same daily struggles as I am.

I think this book would be perfect for newly diagnosed people, teens or guardians/carers.

I loved how many disabled people got to have a say and be represented in this book on a multitude of topics, as we are all too often talked over or outright silenced.

One criticism I have about the ARC Kindle e-book is that it was quite hard to differentiate between the authors text and a contributer's text when it spanned more than one paragraph. I'm sure this will be easily fixed for future readers when the book is published though.

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