Cover Image: The Electrifying Story of Multiple Sclerosis

The Electrifying Story of Multiple Sclerosis

Pub Date:   |   Archive Date:

Member Reviews

I loved this very much! The characters, the actions and even the plot itself! Very inspiring for my own book too!
Was this review helpful?
This is an excellent book for middle grade and up, to learn about what multiple sclerosis is and how the disease affects those who have it.

I wish this had existed when i was young, when my mother was diagnosed. Maybe she could have given it to me, instead of waiting to tell my anything about the diagnosis until i was an adult.
Was this review helpful?
The Electrifying Story of Multiple Sclerosis by #Vanita Oelschlager is a very easy read. The book is very short.And when I requested it by mistake I forgot to look at the publish date.
Thank you,
#Netgalley, #Vanita Oelschlager  and Publisher
Was this review helpful?
A very clear explanation of what MS means. Currently, there are 2.3 million people in the world affected by this chronical sickness whose both causes and cures are unknown. Decades of research were able to offer some basic medical support, including drugs, that might diminish and delay some of the effects. The information delivered in the book is accurate and simple, with an equally informative illustration.
Was this review helpful?
This book was an eye opener to MS,  I work in the care sector and this book was very helpful and  I learnt a lot from this book, that i didn't know beforehand .I would recommend this book
Was this review helpful?
This is a very useful, well-explained and nicely illustrated book that does a very good job of explaining Multiple Sclerosis for an audience of all ages.  A complex disease, Multiple Sclerosis is broken down here in a way that is very easy to understand and digest.  For example, this book is the first time I ever had the origin of the term "Multiple Sclerosis" (aka many scars/lesions) explained to me in such a simple way, and the rest of the book followed suit with equally straightforward descriptions, with illustrations.  This is a great book to give to a kid recently diagnosed, or to any family member who needs an introduction to multiple sclerosis.  I really appreciated this book and would recommend it to anyone who has a friend or family member with multiple sclerosis, no matter what their age.

Thanks to NetGalley, the publisher and the authors for the advance copy of this book which helped me understand a complicated disease much better, in exchange for my honest review.
Was this review helpful?
This is a very interesting and informative read. It is worthwhile reading if you are someone you know is on the MS journey.
Was this review helpful?
This is a nice quick, easy to understand and informative book about MS. It's great for helping family members and friends to understand the disease. There are some statistics, such as the prevalence of MS, that need to be updated since the book was written. Thank you to NetGalley and Vanita Books for a copy in exchange for an honest review.
Was this review helpful?
I must start by saying that not all pages showed for me, some partly, some not at all.  

Well done, informative, easy to read, everyone can understand.  You don't need to be a doctor or in the field to get what is said.  And even better with the photos.  

What I felt was lacking... unless it was in the parts that didn't show in the pdf file I received was the family.  You talk about how the family can help the person, but you don't mention what it does to the family...
Let me explain...  My mother was diagnosed with MS 2 years ago, at 58, but I believe she's had it for a decade since she started complaining about her vision, weird tingling feelings in her fingers, loss of balance... doctors never did a thing until 2 years ago when she finally got an MRI, pet scan, lumbar punction or puncture or tab (? sorry english isn't my language) then they saw the white spots in the brain...

She can walk fine, let's say 95% fine, her memory loss is horrible, mostly short term, so I get it when you say it's a desease people don't see, unless you can't walk or need a cane or a wheelchair... that I understand.  But the big problem is her mood and she doesn't notice it.  So I think this well done book should have a part about how the person acts and destroys the family.  Not just think that it's our job to take care of the person and just deal with it.  She's so mean you wouldn't believe it.  I do everything for her and she's moody and yells at me (her 35 y/o daughter) and acts like a child slaming doors and crying with no tears... tells me I do it all wrong, I clean, cook for her but it's either too salty or not enough or this or that...  She does nothing but sit in front of the tv all day!  And that's not because of the MS trust me!  And makes it all worse by going to bed at 4 am (or 4.30) and drinking... not the MS either!!!  And smoking of course.  So all that to make her memory work better... she won't listen to us... 

You should mention the stress on the family.  She really destroys us!  Now I am aware that maybe it's not the MS or not just that, maybe borderline or bipolar, never diagnosed, I don't know.  Our neurologist never said it was or wasn't the MS making her act, behave, such an awful way with us so I really don't know.

But when I say it's bad I mean BAD!  Like she wishes us gone and we tell her the same, but with her memory loss she then doesn't remember what she told us or what we said.  She acts crazy and mean then it's forgotten and she's calmer.   It's "easy" for her, but us we don't forget.
So much stress from the moment I wake up, not knowing what mood she's going to be in, how she will bring me down again and again and treat me badly...

And her inability to make ANY decision, that I can believe is the desease.  She will stay in front of her wardrobe for an hour to decide what underwear (yes you heard me) to wear... and again will get upset and throw stuff around and violently shut doors...  she will ask me ten times a day if I've seen a tv show to know if it's good and she should watch it, that I don't mind I don't point it out that she's already asked I just answer again but my father does point it out and it makes it worse, I don't believe you should tell the person "you've already asked this yesterday or earlier today..." 
She acts slow in everything she does (aggravated by her alcohol use/abuse, lack of sleep... no more than 4 or 5 hours a night), but she doesn't need help getting dressed or anything, her case is mild, but really slow even to eat, like you can see her brain trying to tell her to get the fork with food in there... 

Trust me when I say that it's not only the person suffering, I bet us the family suffer more than she does.   
And I mean no direspect to anyone, I believe every family and every situation is different. 

Her MS is so "light" so far she's not on meds or anything, the doc said it would do more harm than good, she goes to the physical therapist once a week for 30 minutes to do some gym, YES that's her only treatment (30 mins of gym), and she hasn't gotten worse in 2 years!  So I can't even imagine how she'd behave if she was 'worse'.  

We have a good neurologist, from the start she explained it so we could understand and what I got from it was there is a line between 2 dots in the brain and when those lines are broken the info can't go from point A to point B... 

She goes to the neurologist (with me) every 4 months, has a full scan or pet scan or MRI once a year... 

Again, no direspect for anyone and I hope it didn't come accross as me being a bad daughter or anything, I do EVERYTHING for her and I don't even care I never get a "thank you" but she never says anything positive to me or show any affection and it really is like I don't have a mother anymore.  It is that bad, yet her MS is "mild".  Situation is bad to the point that in the house we all stay as far from her as possible to avoid her, avoid conflicts...  so bad I barely eat (90 lbs) or sleep do treat myself badly (SI) and am so nervous, anxious, tense... 24/7 the only time I can breathe is when she's not around, meaning on vacation, I don't go with them, god no! 

One person told me there should be support groups for family members... maybe it's not just me then.  I do everything for the woman and just wished I felt some kind of affection, like I have a mom and not just a thing to take care of!!!

Thank you to NetGalley for the opportinuty to read this book for an honest review.
Was this review helpful?
Vivid presentation on the brain's and body's reactions to Multiple Sclerosis. With easy to understand terms and explanation The Electrifying Story of Multiple Sclerosis describes this condition in a dynamic way that would support the teachings in any science class, doctor's office, or patient support service. Job well done. 4-star. #JozefBookandBrew
Was this review helpful?
"The Electrifying Story of Multiple Sclerosis" by Vanita Oelschlager is a good book for people to read if they have a family member or friend with Multiple Sclerosis .  The book is easy to understand and is informative.

I have had Multiple Sclerosis for 12 years now and there are still friends/people that do not understand what's it like to live with something intangible, cant be seen, felt,  or touched. Constantly I am told but you don’t look sick...

Because Multiple Sclerosis is a disease that someone will live with for years, or even decades, it is important for family and friends to understand what the person is going through and learn how to give support.

Multiple Sclerosis used to be feared because it was so unpredictable and doctors knew very little in how to treat it. Thanks to good research and great doctors, people can live with MS even though there is not a cure yet. The Electrifying Story of Multiple Sclerosis is written to help people understand what it feels like to have the disease and how to help.

This I requested and received an Advanced Readers copy from the publisher and Netgalley. All thoughts and opinions are my own
Was this review helpful?
I have MS for twenty years now and there are still people that do not understand what's it like to live with something can can not be seen, felt, touched or heard. Close family and friends always get a better understanding of what might be like living with this disease, but outsiders have a hard time. This book is a helpful guide for people surrounding patients. It should be a must read if you have to deal with this type of silent diseases. f you have it, read it and buy it for your loved ones. If not, have a look because its always good to know whats going on.
Was this review helpful?
This is a good book for family members or friends who have MS. The book is easy to understand and is informative.
Was this review helpful?
I received this book free from NetGalley in exchange for my honest review.  
Thanks NetGalley!

informative book about the basics of living with MS.       easy to read
Was this review helpful?
Presented in layman's terms, the author went on to describe the impact MS has on our well being. This book was easy to read and packed with useful information. The great illustrations helped tie this awful disease into a neat little package of greater understanding. I highly recommend this book.

I send my thanks to NetGalley and Vanita Books for this digital edition in exchange for an unbiased review.
Was this review helpful?
Thank you to NetGalley and the publisher for this ARC. 
A great informative book for those with no real knowledge of what MS is and how it affects people.  It provides the basics and you don't have to have MD  behind your name to understand.  
I recommend it if you have been diagnosed with ME or know someone who has been, it's a great starting point for more complex information.
Was this review helpful?
*Got this book courtesy of NetGalley* 
It's a good little book to learn basics about what is MS. I'm not sure who is it aimed for, as at times it feels like the author is talking to a child. As I've said - it gives you basic information, but it's enough to start from. The book is a bit repetitive, but maybe that's the point - to make readers remember. I very much liked section, where the book suggests ways in which you can try feeling like a person with MS. Those ideas are good and they will make you feel like people with other neuromuscular diseases, believe me. 
Everything is great, but there's this:
<a href="https://ibb.co/dVQEQq"><img src="https://thumb.ibb.co/dVQEQq/br.jpg" alt="br" border="0"></a> 
IT'S <b>YOU ARE</b> FFS!
Was this review helpful?
As a daughter of an MS fighter for 35+ years, I found this book to be a wonderfully instructive part of understanding MS as the complicated disorder it is. Easy to read with wonderful illustrations, this text is a must have for those recently diagnosed and wondering what comes next as well as caregivers and family of those diagnosed with MS.
Was this review helpful?
This short little book was so educational and eye opening! I learned a lot of things I didn't know before and the fact that it had illustrations was a great bonus. Books like this one should definitely be more popular.
Was this review helpful?
This short book provides very practical and useful information for those new to MS. Whether the person recently diagnosed or a family member, the book is presented in easilybinderstood text. I especially liked the examples provided for family members and care givers to have a better understanding of living I. The body of someone with MS.
Was this review helpful?