Strange Beauty

A Portrait of My Son

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Pub Date Aug 22 2017 | Archive Date Aug 21 2017

Description

A unique and hopeful story of how one woman and her family were transformed by her child's multiple disabilities and inability to talk and how she, in turn, transformed a community.

This intimate, no-holds barred memoir shares one family's experiences with a child who is both autistic and physically disabled. It is a story of infectious laughter, blood on the floor, intense physical conflict, and of two little girls growing up in the shadow of their charming and fitful brother. And it is the story of a mother and writer and the illuminating effect of imagining the world through the eyes of her beautiful, charismatic, and nonverbal son, Felix. 

Felix and his sisters inspire Eliza to start Extreme Kids, a community center that connects families with children with disabilities through the arts and play, and transform how she saw herself and the world. She writes of the joy this project brings her, as well as the disconnect of being lauded for helping others at the same time that she cannot help her own son.

As Felix grows bigger and stronger, his assaults against himself grow more destructive. When his bruised limbs and face prompt Child Services to investigate the Factors for abuse, Eliza realizes how dangerous her home has become.

Strange Beauty is a personal story, but it shines a light on the combustible conditions many families are living in at this moment. The United States offers parents whose children are prone to violence very little help. That Eliza's story ends happily, with Felix thriving at Crotched Mountain School, is due more to luck than policy.  There are few such schools and many such children. 

When children are violent, we fail to account for the internal and external pressures that lead to violence. This is both cruel and counterproductive, for people with disabilities have much to teach us, if we will only listen.

A unique and hopeful story of how one woman and her family were transformed by her child's multiple disabilities and inability to talk and how she, in turn, transformed a community.

This intimate...


Advance Praise

Factor (Love Maps, 2015, etc.) chronicles life with her nonverbal son Felix, who is autistic and physically disabled.When the planes hit the World Trade Center towers on 9/11, the author's boyfriend, Jason, was near the buildings. While she waited for news from him, she had the agonizing fear that they might never have a child together, which led them to getting married and pregnant a year later. During her pregnancy, Factor contracted chicken pox, which, though she didn't realize it at the time, hurt her growing fetus. In this honest memoir that vibrates with unconditional love, the author details what life is like with Felix and her other two children. It took many months, numerous visits to doctors and specialists, and endless tests before she found out just how handicapped Felix would be due to his lack of white matter in his brain. Factor adeptly chronicles each step of the process, each moment of triumph when Felix reached a new goal, and the times when she and her husband felt dismay and even shame when he failed to advance like the other toddlers around him. Throughout, readers gain a sense of the complexity of Felix, whether he's happy, responding to music therapy, or engaged in some awful fit that forces him to scream and tear at his own body. Factor also discusses her other two children, who were born without such issues, her battles with the health care and educational systems, and her subsequent founding of the nonprofit community center Extreme Kids & Crew. The author's story demonstrates the need for more quality help for parents of children with disabilities, who will find solace in knowing that others have struggled and found joy in this type of parenting. A frank, compassionate, and highly detailed account of the roller-coaster ride of caring for a disabled, autistic child. ~ Kirkus

Factor (Love Maps, 2015, etc.) chronicles life with her nonverbal son Felix, who is autistic and physically disabled.When the planes hit the World Trade Center towers on 9/11, the author's boyfriend...


Marketing Plan

  • Extensive review coverage including NYTBR (where she's been reviewed in the past)
  • New York City and Brooklyn bookstore events and appearances: Word Bookstore, McNally Jackson, Brooklyn Book Festival
  • Women's long lead magazine mentions: O, Elle, Spirituality and Health
  • New York City electronic media including WNYC's "NY and Company," NY1 TV, etc
  • Chronicle of Higher Education and other journals for educators and educators of special needs students
  • Features and interviews on blogs, websites and magazines serving families with disabled children including Exceptional Child, Autism Speaks, Brain Child
  • Blog tour and author contriburions to HuffPo, Utne Reader, Beliefnet, Salon, Psych Central
  • Inclusion on resource lists of non-profits and organizations that serve disabled children and their families
  • Facebook giveaways with advertising support
  • Google AdWord promotion
  • Book trailer
  • NetGalley listing
  • GoodReads giveaway
  • Parallax webinar
  • Extensive review coverage including NYTBR (where she's been reviewed in the past)
  • New York City and Brooklyn bookstore events and appearances: Word Bookstore, McNally Jackson, Brooklyn Book Festival
  • ...

Available Editions

EDITION Other Format
ISBN 9781941529720
PRICE $18.95 (USD)
PAGES 240

Average rating from 17 members


Featured Reviews

Oh how I loved this book! I suspect that if I waxed lyrical about what a wonderful person Eliza Factor is, that she would not agree or welcome gushing praise but her honesty and humanity shines through the pages of this book. I suffer from a purely physical disability and my eldest son suffers from ASD, ADHD and now as an adult he also has mental health diagnoses as well. How I wish I'd lived in New York and been parenting him when Eliza set up Extreme Kids and Crew! What Eliza says about just letting the kids be. No limits, no arbitrary rules, just allowing them to be their natural selves and exhibit their usual traits is so powerful and something I wish had been pointed out to me, as a young mother as being important. My son liked to run, back and forth between walls or doors and his whole childhood was made up of people telling him not to. I wish I had, had the confidence to allow him to be more of himself rather than obsessing over trying to make him copy neurotypical children. My own struggle with disability had me nodding along and sardonically laughing at the family's struggles with public transport and bureaucracy when it comes to applying for help, financial support etc.
Eliza's writing style is warm, friendly and markedly honest. I know, having finished this book, that this wasn't a sugar coating, waxing lyrical about disability without mentioning the sadness, the guilt, the anger. All of those are mentioned in spades and with love and often humour. I really felt that I could feel and hear Felix and was so pleased that Eliza gave hints as to where to find a YouTube video of him and a news segment about Extreme Kids so that I could put his face to the things I already felt I knew about him. It also opened a dialogue in my head of how the American health system, something I don't envy at all, can actually in the field of disability, hold advantages over our NHS where we can't choose our specialists or request appointments without our family Dr referring us.
I recommend this book to anyone, but for those whose life is affected by disability in any way I think it is a must read.

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A truly thought provoking read, so honest that you can feel the highs and lows throughout the book. This story offers fantastic insight into the battles families face and how children can become symptoms instead of children. Thank you for sharing this with us

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Strange Beauty by Eliza Factor was an amazing read. It charts, in a very open and honest way and sometimes with a touch of humor, the story of her son, Felix, from his birth and diagnosis with physical disabilities and autism to special and significant moments in his life.

As a person with multiple physical disabilities myself, I could identify with many parts of the story and especially with the daily fight they faced. The story is so engrossing, and I could really see the personality of Eliza, her husband Felix and his sisters coming through throughout the course of the book. Felix's determination in everything he does as well as that of all the family was very well represented.

The flow and pace were exactly right, so much so that I read it in a day. Thanks so much to Eliza and her family as well as the publisher and NetGalley for an advanced Kindle ecopy prior to publication. The mention of the YouTube channel as a place to find Felix and the Factor family was a beautiful and special touch to the book as I could see the family and how they lived their life and put a face to their names.

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As the mother of an Autistic child, I've read my share of books and articles on the subject, but this was the first book I've read from a mother's point of view. Granted her circumstances are very different than mine, both financially and severity of her son's disabilities, but I felt a sort of kinship with her. It is oddly comforting to know that others have the same dread at the monotonous paperwork, meetings, therapies and IEP evaluations just to get your "special needs" child help so they may be a little better off in life. One of the gifts I took away from this book was the realization that I don't have to feel guilty of my sleep deprived and frustrated thoughts about my son. I felt lighter for having read Eliza's story and to know it's ok to ask for help when you have hit your limit.

I would recommend this book to anyone with a special needs child or even readers that like memoirs.

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I love the way the author is real and honest in the struggles and beauty of raising her son. Her discussion of society's expectations of "normal" challenge and encourage the reader in a number of ways to view the world differently and to look for new ways to accept self and others.

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This book a beautiful, challenging and thought-provoking work on the struggles -and unique beauties- of a mother who raises a son with disabilities. The writing style was talented, pleasant and flowed naturally and I, as the reader, kept feeling the same feelings that the protagonist experienced. I was laughing during the joyous moments, I was crying when darkness arrived around the corner.

What made me completely fall in love with this book is the fact that Eliza Factor was completely honest and straightforward on everything she included in this book. She didn't sugarcoat the hardships of raising a son with autism and physical disabilities and she knows how to make her readers want to learn even more about this pair of gorgeous human beings -mother and son.

I wholeheartedly adored this book and I would strongly recommend it to anyone who's even a bit interested in the premise. Happy reading!

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