The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the Grandmother I Never Knew
by Amy Byer Shainman
Pub Date 05 Dec 2018
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Resurrection Lily shares a story of inheritance and intuition, of what can surface in the body and the spirit when linked by DNA. As Amy Byer Shainman discovers she has inherited a BRCA gene mutation that puts her at high risk of developing certain cancers, she struggles to come to terms with preventively removing her breasts when she does not have a breast cancer diagnosis. Through her experience making decisions about her health, Amy becomes invigorated with purpose and establishes herself as a leading advocate for those with BRCA and other hereditary cancer syndromes, tirelessly working to educate others facing the same daunting reality.
Painting a timely and moving portrait of what it feels like to carry a BRCA gene mutation, Resurrection Lily provides firsthand insight into the patient experience. Weaved throughout Amy's open and vulnerable story is the expertise of her doctors, education from top medical experts in cancer genetics, and whispered lifesaving guidance from her grandmother Lillian.
A Note From the Publisher
"Resurrection Lily is as helpful a book as you will find on the topic of BRCA mutations. Amy Byer Shainman has deftly intertwined crucial scientific information with moving stories of how she, her family and her friends have navigated this complex genetic issue." - Barron H. Lerner, MD, PhD Author of The Breast Cancer Wars: Hope, Fear and the Pursuit of a Cure in Twentieth-Century America
"Shainman's memoir is poignantly inspirational throughout...she provides sensible information about medical due-diligence, especially involving genetic testing."- Kirkus Reviews
"Amy Byer Shainman achieves a powerful thing in Resurrection Lily - she brings highly curated clinical information and personal experience together. By sharing her own 'previvor' voice, the voices of family and friends with cancer and hereditary risks, and the expert voices of the clinical care team that supports individuals at high risk for cancer, she has created a fantastic resource for those who want to understand the experience of genetic counseling and genetic testing, whether they are seeking information for prevention, treatment or for the benefit of their family." - Erica Ramos, MS, LCGC, Past President - National Society of Genetic Counselors
"With raw honesty, Shainman articulates coming to terms with her decision to have a prophylactic 'preventative' mastectomy. Whether she is reflecting on the value of heeding intuition, documenting a surgical consultation, or dealing with anger, Shainman transparently tells it like it is. I recommend the book to readers who want to learn more about hereditary cancer, genetic counseling, and the BRCA gene." - OnlineBookClub.org
"Told with a brutal honesty, while still maintaining the occasional foray into lightheartedness of everyday life, RESURRECTION LILY resonates with as much inspiration as it does information. As a guide to monitoring one’s health and remaining vigilant for any possible detriments to that health, this story should be recommended reading for anyone with a genetic makeup and breast tissue – meaning, of course, everyone." - IndieReader
"Amy Byer Shainman has pulled back the curtain on what it's like to carry a BRCA gene mutation. Nurses, interested in oncology, will find this book informative as they will likely become more enlightened as to what their patients are going through." - Iris R. Accettola, MSN, RN, OCN (retired)
"It is a book to learn from but also an account to enjoy on a personal level. Although for many people the central theme will be less than cheerful, in many respects this is a positive book, and the characters appearing in it are vivid and memorable. Beautifully written and interestingly presented through a central structural metaphor, it is a biography dealing with an increasingly important topic, and one that will appeal to a very wide audience." - Readers' Favorite
"This book explains what the BRCA gene is and all its ramifications in incredible detail which could be incredibly boring except that Shainman weaves the medical and scientific information into her personal story. Following her as she discovers her family history and faces the hard medical decisions BRCA carriers have to make, we feel every piece of her experience along with her. Written with authenticity and a generous dose of humor, this book is a wonderful memoir and a great resource of BRCA information." - Valerie Staggs, Author of This Side of Heaven, A Memoir
Amy Byer Shainman, also known as BRCA Responder, is a patient advocate who provides support and education surrounding BRCA and other hereditary cancer syndromes. She's the executive producer of the award-winning documentary Pink & Blue: Colors of Hereditary Cancer and co-creator of #GenCSM (Genetic Cancer Social Media). Shainman has been featured in Cure Magazine, The Jewish Journal, and The Palm Beach Post, as well as numerous live and taped television and radio segments nationwide. As a digital ambassador for the National Society of Genetic Counselors gene pool, she is considered one of fifteen influencers who have unique perspectives and knowledge in the fields of genetics and genetic counseling. Her articles have been published in The American Journal of Managed Care, Jupiter Magazine, and Oncology Nursing News. She lives in Florida with her family.
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