A Life With Lyme Disease
by Morven-May MacCallum
This title was previously available on NetGalley and is now archived.
Pub Date 31 May 2017 | Archive Date 12 Apr 2022
"I would like to introduce myself, I feel it's only fair. Only I know you so well now, you might get a scare. I know you know I'm in there, though I crept with greatest stealth: I am the hidden monster buried within yourself."
Joyce is only sixteen when she's torn from the life she loves. Two years pass, but Joyce, her family, and her best friend Logan, are no closer to learning what's causing her dizzying array of symptoms.
As Joyce tried to come to terms with her increasing limitations those around her struggle to understand what she is going through. Baffled and unsure, the doctors eventually diagnose Joyce with ME and CFS. But when Joyce and her family refuse to accept this diagnosis, her mental stability is called into question.
Desperate for the truth and scared for Joyce's life, their only hope lies in a private hospital where she is finally diagnosed with Lyme Disease.
Can Joyce survive a treatment as brutal as her illness? Can she find her way in a world she no longer recognises?
A Note From the Publisher
Media enquiries: email@example.com
"A very honest and inspiring heart breaking story - a must read" - Ally Hilfinger
"Finding Joy is an honest, poignant account of a devastating chronic illness which is misdiagnosed for too often. This novel will resonate with anyone experiencing a largely invisible condition and trying to interact with the external world, whilst dealing with horrendous inner turmoil. Joyce's isolation is palpable as she tries to convince the medical profession that her symptoms aren't in her head and she is unable to join in with activities she once loved. Finding Joy is compelling and beautifully written, providing a telling insight into what it is like to live with Lyme disease which is a highly misunderstood illness. It accurately captures the everyday nuances and points a vivid picture for those unable to step into the body of a Lyme sufferer, even for a few minutes. Many doctors are unable to recognise the symptoms of Lyme disease and make an early diagnosis, thus missing the chance to treat the condition early on. If left, Lyme disease can cause severe complications. More education, research and awareness is desperately needed." - Natasha Metcalf, Lyme Disease UK
Average rating from 3 members
I read this in one sitting as it’s a subject close to my heart.
I really felt for joy and could feel her pain as my own. When she makes the statement I’m not afraid of dying I’m afraid of living like this, it’s just like hearing myself say the words. I’ve not been diagnosed with Lymes (although had the test via my gp in the uk) which was negative but often feel my symptoms which came on suddenly in 2015 fit very well with this awful infection.
I was diagnosed with CF and fibromyalgia and basically left to get on with it for. Number of years. This book brings to light the suffering endured by chronic Lyme infections and this is not just physically but mentally and other invisible conditions. I really wish there was more awareness of this in the UK and better testing facilities with accurate diagnosis.
Well done Joy my heart goes out to you girl. Keep going take each day as it comes rest when your body says rest. God bless!