The Journey Ahead: A Practical Guide for In-Home Caregivers
by Susan Scarff, Ann Zultner
Pub Date 06 Jan 2017
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Within a year of receiving her husband's diagnosis, Susan Kiser Scarff had a classic case of caregiver burnout. She couldn't concentrate at work. Friends drifted away. Overwhelmed, she struggled to make the transition from Red's wife to his protector, nurse, and mother. Susan's experience as a first-time caregiver, recorded in these pages with grace, wisdom, and humor, prove just how much there is to learn: finances have to be handled a different way in case the patient decides to make a lone trip to the bank; aggressive behavior is a constant threat; safety becomes a concern in every aspect of daily living.
Filled with practical advice for every stage of the disease's progression, including information on support groups to help you prevent burnout, questionnaires designed to keep your loved one safe, and checklists to give you control in this time of unknowns. Dementia: The Journey Ahead will help you help your loved one--every step of the way.
If you are a caregiver - this is a must read! This book,unlike others I have read, does not go into the "poor me's". Rather,not only does it tell of the author's journey with her husband's dementia, it also describes the ever-changing dynamics of their relationship, with patience,clarity, and highly descriptive dialogue. The most impressive part of the story, however, are the vast resources the author imparts to the reader. Wow!Not only does she have a list in the back of the book, unlike most books on the subject, she gives descriptions of what exactly these resources are. From Hospice Care to Elder Care and the like, every resource has a small to medium size description, and how it might be useful to the reader. She deals with subjects that aren't "pretty" (unlike other authors), such as incontinence, and what products she found the most useful to her and her husband Red.
There are "points to remember" in almost every chapter, such as questions to ask when it may become time to place your loved one in assisted living, and what to ask a home health care agency as well. Safety features, as well as numerous other circumstances one might encounter are included as well.This is one book that is not going to be stuffed away in the corner of my library - it shall remain on the shelf in my office for easy reference and for sharing with others. Ms. Scarff, I am sorry for your loss, but it should give you some peace knowing that in writing this stellar little book, you have helped so many. Caregivers - get this book!