I devoured this book in one day. I too have hyper mobile EDS so enjoyed reading this. It’s always interesting to see the similarities in how we are and how we think and navigate our conditions. I particularly will start looking at my pain as my friend a concept I hadn’t thought of. I looked at pain as my enemy but I can see how viewing it as a friend will help. Pain is our bodies way of protecting us and warning us, so it is a friend in that respect and instead of feeling afraid of it ill try and embrace it. And I do say try. One part of the book where the author says she is happy to have her pain (or words to that effect) I don’t think I’ll ever agree with. But become friends with it I can definitely do.
I would have liked to have learnt more about her earlier life and how the condition affected her in her childhood, teens. It was touched on but only briefly. Also POTS and MCAS is a huge part of the EDS and I wish more was talked about to do with that ie what helps what doesn’t how it impacts the authors life as I find those two things hugely influence pain levels especially the histamine intolerance which also can impact POTS and chronic fatigue. Also a little more on the mental health challenges as I find it’s just as mentally challenging as it is physically. I would love to get to know the author personally so we can share tips and ideas. Overall I thought it was great and hopefully it will bring more awareness of this condition and help fellow zebras not to feel so alone 🦓