A Patchwork of Care
Living the Reality of Dementia Caregiving
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Pub Date Aug 28 2026 | Archive Date Sep 25 2026
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Description
I did not set out to write a book about dementia. Like many people, I believed I understood what Alzheimer’s disease looked like: quiet forgetfulness, gentle confusion, a gradual and peaceful fading. I thought it would be sad but manageable, dignified and recognisable.
I was wrong.
Dementia did begin as a softening of memory, but it did not remain gentle. It became disruption, fear, and relentless uncertainty. Our days were shaped by agitation and sudden shifts in mood, by confusion that could turn to anger or suspicion without warning.
The person I loved was still there, yet increasingly unreachable, often frightened by a world that no longer made sense. What unsettled me most was how unprepared everyone seemed to be, including me. The public image of dementia bore little resemblance to daily life at home. Support existed in theory, but in practice it was fragmented and often ill-suited to what was truly needed.
This is not a medical guide.
It is a record of dementia as it was lived – confusing, frightening, and exhausting. Above all, it is an attempt to replace comforting myths with something more honest. Until we face the reality, families will continue to endure it largely unseen.
A Note From the Publisher
Available Editions
| EDITION | Ebook |
| ISBN | 9781806348107 |
| PRICE | £6.99 (GBP) |
| PAGES | 304 |
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Featured Reviews
Carman Y, Reviewer
I originally requested this book because I too am a caregiver for someone with dementia. I had no idea how many similarities there were with this book and my situation. Thankful that this raw, heartbreaking book was written. It will be a wonderful tool for anyone that struggles in this area of dementia.
Stacey B, Reviewer
A heart-rending yet matter-of-fact depiction of life caring for a dementia sufferer. It’s a difficult read and you really feel for both Duncan and Alice. Duncan’s love for his wife echoes clearly throughout his account and the care he provides Alice is underpinned by it. A really eye-opening and important read.
Mary H, Reviewer
4 stars
Certainly had empathy as I'm looking after my Mom (95) who has Alzheimer. I'm wondering if the author is quite senior as like my Dad he would tidy up before a carer visit, I had to explain to Dad that professional carers know how to deal with incontinence. I expect it is especially challenging if your person likes to wander. He was fortunate to have day centres....I think there are fewer of these now.
I agree that the GPs and NHS offerings of help are often limited. My Mom has never had a brain scan but had had 6 month follow ups. Dementia UK has been useful.
I voluntarily read and reviewed an advanced copy of this book. All thoughts and opinions are my own
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