My Two Elaines

Learning, Coping, and Surviving as an Alzheimer’s Caregiver

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Pub Date 13 Jun 2022 | Archive Date 30 Jun 2022

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Description

In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can't remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children.

One part love story, one part practical advice, this compelling book includes several unique elements:

  • Excerpts from Elaine's journal, recounting her thoughts, concerns, and frustrations as the disease progresses
  • A recurring feature called "What I Wish I’d Known," which provides helpful takeaways for caregivers based on Marty's observations about what he wishes he'd known sooner and done differently
  • A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs

Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.

In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently...


Advance Praise

Best Caregiver Books - Caring.com

100 Best Alzheimer’s Book of All Time - BookAuthority

“If you or someone you know is a caregiver, this is a must-read. Your loved one really does become a different person. As I learned from my mom’s dementia, learning how to deal with her was key to ev-eryone’s sanity. There are many helpful hints here.” — Bonnie Blair, five-time Olympic gold medalist

“At one moment this book is a heart-wrenching account of the devastating toll of Alzheimer’s, and the next moment it is a heart rending love story. The minute you are holding your breath at the brutality of the disease, Marty rescues you with a concrete, doable message that can lead to lovely moments of joy. No health-care pro-fessional, family member, or caregiver should be without it.” — Dawn Adler, director, Ovation Adult Day Services, Milwaukee, Wisconsin, coauthor of Illuminate: An Integrated Curriculum for Early Memory Loss Programs

“Marty shares his personal story with dignity and grace. My Two Elaines helps the caregiver realize you must take care of yourself, have a sense of humor, and take advantage of help to survive the stressful days ahead. It is a great resource for families.” — Linda Cody, director, Village Walk Senior Living, Patchogue, New York

“Your book is now at the top of my list; written from the heart, rein-forcing, yet honest.” — Susan M. Gross, education and family care specialist, Alzheimer’s Association North Central Texas Chapter

“This wonderful book gives a personal perspective of a couple’s jour-ney with Alzheimer’s disease as they reach out for help and support. The personal sharing, the compelling development of Marty, and his insights as a caregiver all provide for an important message.” — Michael Malone, MD, medical director, Aurora Senior Services chair, Public Policy Committee, American Geriatrics Society

“Marty has truly captured the essence of loving and caring for some-body with this disease. His book is insightful, thoughtful, heart-warming, and respectful. Marty’s sense of humor and abundant pa-tience surely are a blessing for Elaine.” — Scott McFadden, president and CEO, Lutheran Home and Harwood Place, Milwaukee, Wisconsin

“To be complete, stories about Alzheimer’s disease and caregiving must touch on both defeats and triumphs. In My Two Elaines, Gov-ernor Schreiber stirs the hearts of readers both with great suffering and great love inherent to the caregiving journey, lightening the load with humor. He introduces us not only to the woman he mar-ried and the person she became after Alzheimer’s but also to the extraordinary individual who loves them both: her Marty.” — Daniel C. Potts, MD, FAAN, attending neurologist, Tuscaloosa VA Medical Center, Alabama founder and president, Cognitive Dynamics Foundation

“With poignant clarity and candor, Schreiber provides readers with insight into the often incomprehensible world of a person living with Alzheimer’s disease as well as the many challenges faced by family caregivers. My Two Elaines is easily integrated into health-care curriculum, sparking rich discussions related to dementia, caregiving, anticipatory grief, advance care planning, and commu-nity support services. Feedback has been overwhelmingly positive, with many learners expressing gratitude for the opportunity to gain a deeper understanding of the family caregiver experience.” — Dr. Stacy Barnes, Director, Wisconsin Geriatric Education Center, Marquette University

“My Two Elaines demonstrates beautifully that the journey is not just for the person with the diagnosis but for the spouse and family as well and that it is a journey to not attempt alone and unsupported. [Marty’s] discussions will no doubt help those who may be afraid to admit they don’t have it all under control. I highly recommend this book. It is a quick read that provides a lot of great advice that will decrease the learning curve immensely.” — Tara Reed, author of What to Do Between the Tears: A Practical Guide to Dealing with a Dementia or Alzheimer’s Diagnosis in the Family

“Marty Schreiber has written a book that is invaluable to the Alz-heimer’s community. His personal experience (and wisdom gained) as a caregiver is shared in such an honest and impactful way that it should be mandatory reading for all individuals who step forward in this capacity.” — David Simbro, senior vice president, Northwestern Mutual former member, Alzheimer’s Association Board of Directors

“My Two Elaines provides real life lessons about how to cope and survive each day with loving care, particularly when communica-tion is lost. Marty helps caregivers work through their guilt and sheds light on making difficult decisions when professional care is needed for a loved one. Most of all, Marty brings us an amazing story of love, understanding, and hope. It is one of the most moving and powerful stories I’ve read.” — Julie Tombari, administrator, New Day Adult Care Center, North Palm Beach, Florida

“I encourage my fellow health-care professionals to read and share this book.” — Judy Beiler, RN, director, Global and Executive Health Program, Aurora Health Care

“I only wish my father had this book to help him during my own mother’s illness.” — Paula Kiely, city librarian, Milwaukee Public Library

Best Caregiver Books - Caring.com

100 Best Alzheimer’s Book of All Time - BookAuthority

“If you or someone you know is a caregiver, this is a must-read. Your loved one really does become a different...


Marketing Plan

Supported through the author's numerous speaking engagements

Key partnerships with the Alzheimer's Association

Advertising for Google and other search-related platforms

Author hometown: Milwaukee, WI

Supported through the author's numerous speaking engagements

Key partnerships with the Alzheimer's Association

Advertising for Google and other search-related platforms

Author hometown: Milwaukee, WI


Available Editions

EDITION Other Format
ISBN 9780785291695
PRICE $27.99 (USD)
PAGES 208

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Featured Reviews

As a current caregiver, this book is all too relevant. It was enlightening to read the caregiver journey from a male perspective. The book is reading a love story but also getting advice from your best friend. Highly recommend!

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I love reading books about various illnesses and disease that I am not super familiar with so I cant get an idea of what it is like to live with them. This book was exactly that and then some. Not only does the author put you in the shoes of someone handling Alzheimer's in their everyday life but he also gives you practical advice and little tidbits of knowledge about the illness that could be very beneficial for someone that had a loved one diagnosed with Alzheimer's.

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This is one of the most loving and heartbreaking stories I have ever read. My heart goes out to this couple who were there for each other, in sickness and health.

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